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Gluten intolerance in babies

PostPosted: 01 Nov 2015, 00:04
by Kanga
Anyone got any experience?

Ds2 has just turned 1 & recently has Ben having unsettled nights with lots if screaming, arching his back & being gassy. I am keeping a food diary as it seems worse the nights he's had pasta or other gluten for dinner. Doesn't seem too bad if he had it for breakfast or lunch although he is generally a bit whinge and clingy.

If he is sensitive is it the sort of thing he might grow out of? Of course it could all be teeth or something totally unrelated!!

Re: Gluten intolerance in babies

PostPosted: 05 Nov 2015, 12:24
by Mummamac
I know very little about gluten intolerance, I'm sorry. But I do know a little about Coeliac disease, which is for life and can now be determined by a simply blood test. They can do a gene analysis and tell you 100% if you have the disease or not. Does sound like similar type of complaints that a Coeliac would complain of so may be worth a look into?

Re: Gluten intolerance in babies

PostPosted: 05 Nov 2015, 14:24
by Kanga
My brother doesn't eat gluten as it makes him feel ill but coeliac tests have been negative. Ds2 has been gluten free for 5 days now and I think he's different. He's still waking at night but not screaming in the same way, his nappies are different - more solid and he's possibly happier in himself. But all of those things could also be explained by other things so who knows! Im going to give him some gluten at the weekend & see what happens then probably go to the dr armed with my food diary etc!

Re: Gluten intolerance in babies

PostPosted: 05 Nov 2015, 14:29
by yorkshirepudding
It's so hard trying to work out what is causing what in small people! I remember cutting out dairy to see if it helped Moo's reflux and thinking well maybe he's better but maybe it's because of X or y instead. hope the dr listens to you seriously and you get an answer soon.

Re: Gluten intolerance in babies

PostPosted: 06 Nov 2015, 12:31
by junglewonderland
Kanga, I'm on a fb group for mums of babies with food allergies/intolerances. there are lots there whose babies have problems with gluten. As far as i'm aware all allergies and intolerances have the potential to change over time. If you really think it is gluten I would cut it out of his diet for a good while (2-4 weeks) and maybe yours too, if you are still breastfeeding. Then try it again for 3 days and see if there is a real difference. Good luck!

Re: Gluten intolerance in babies

PostPosted: 09 Nov 2015, 14:39
by Kanga
Gah! I kept ds2 gluten free for a week & yesterday he had some bread & birthday cake & last night he was screaming & arching etc again. He'd been waking up a lot still last week but settling easily.

Just spoke to the gp as they wont just give me an appt, and although she did say she's happy to do a blood form for him, she said he'd have to be on a normal diet for 6 weeks before they do the test. I don't know if I can take 6 weeks of nights like that let alone it not being fair on ds2 :( They are going to try to get me an appointment this week partly so I can find out if there is something I can give him during the night as calpol doesn't seem to touch it.

Dh said can't we just keep him gluten free if we think it makes a difference which I suppose we could, but it would obviously be good to know if there is actually something wrong. Sigh

Re: Gluten intolerance in babies

PostPosted: 10 Nov 2015, 05:43
by junglewonderland
Oh Kanga, that's hard. If it helps, when it comes to allergies, the gold standard is elimination and challenge, that is more reliable than tests. And with intolerance, I don't know that there are any tests anyway.
We just did a few months of major diet eliminations when junglebaby had some blood in his poo. It was such a pain. In the end, once we got the tests done, it turned out it wasn't food related. But I couldn't just sit there doing nothing. (((Kanga))) do what you feel you can cope with!

Re: Gluten intolerance in babies

PostPosted: 10 Nov 2015, 10:26
by Kanga
Thanks jw. I also feel like I have to do something to figure it out. I thought I'd have to fight to get them to test for coeliac but the dr seemed happy to do it. Like you said though, if it's not that and *just* an intolerance it will probably be harder to test for.

Looking at his food diary though, the worst nights were when he had pasta for an evening meal but just bread at lunch wasn't as bad, so that may be a way to keep his diet normal but hopefully not affect the nights. We'll see... I already feel like I'm on the brink of not coping so any more loss of sleep might break me!!

Re: Gluten intolerance in babies

PostPosted: 15 Nov 2015, 19:08
by welovepresents
Hello !
My ds2 has been diagnosed by a consultant at gosh with a type 2 allergy to gluten as established by elimination and reintroduction. ...you can still have an allergy without being coeliac. He had colic and unexplained gi symptoms from birth - burps, diarrhoea - and it took us too long to establish. He also has dairy allergy. We don't really know anything conclusive other than from the elimination test. Pm me if you want to ask more . ...
Haven't posted in so long !